Apr 16 General Update
Olivia is doing well since she’s been woken up from her tracheostomy recovery. She is still swollen, especially in her head and neck, but she’s looking pretty good otherwise. Olivia…
Apr 5 – Tracheostomy Update
Today was the big day - Olivia had surgery to have a tracheostomy placed, which was successful and unremarkable The surgery was less than two hours, including the prep For…
Mar 30 Update
Olivia turned 100 days old today! Weight = 6lbs 3oz - more than four times her birth weight Tracheostomy Update: Olivia’s procedure is scheduled for Monday, April 3. She will…
Mar 18-21 Update
Today (3.21.23) is Olivia’s due date She turned 3 months old yesterday She weighs 2.58 kg, or 5 lbs 11 oz Her steroid course is complete Becky and Max will…
Mar 10-13 Update
Respiratory Unfortunately Olivia has not made much progress with her vent settings at this time - the steroids haven’t shown much effectiveness She’s halfway through the steroid course, so there’s…
Mar 2-4 Update
BIG NEWS - Olivia had her PDA procedure yesterday! We have been waiting for this for months! This procedure closed her PDA with an amplatzer duct occluder II. Olivia was…
Feb 24-26 Update
Olivia has been completely weaned off the nitric oxide for the first time in weeks, and the paralytic was stopped After this, the team did a repeat echo to look…
Feb 17-20
EXCITING NEWS! OLIVIA IS BEING MOVED TO CHILDREN’S HOSPITAL FOR THE PDA PROCEDURE! There were several steps before getting to this point. We’ve been waiting for this since Saturday, when…
Feb 13-16 Update
Olivia turned 8 weeks old on Valentine’s Day! Mom and Dad spent the evening with their love, holding her for a few hours. She was very active and was looking…
Feb 3-5 Update
Olivia weighs 1870 grams - that’s 4lbs 2oz!!! Yes, lots of that is definitely still excess fluid Her diuretic is being increased, and her eyes are looking slightly less tree…