July 6 Update
BIG NEWS - WE HAVE A PRELIMINARY DISCHARGE DATE SET FOR LATE JULY!!!!! AHHHHHHHHHHHHHHHHHHH Nap chairs are the best, amirite? Respiratory: Olivia is now doing 2 hours of time off…
June 29 Update
Olivia weighs 4.9 kg or 10 lbs 13 oz Respiratory Olivia’s PEEP was weaned to 7, and then 6 in the last week, and her pressure support went down as…
June 20 Update
Olivia turned 6 months old on 6/20 She now weighs 4.77 kg, or 10 lbs 8 oz She grew to 53.2 cm or 20.9 in Max celebrated his first Father's…
June 12 Update
Yesterday Olivia’s Omegas walked in the Boston Children’s Hospital Eversource Walk for Kids! Our team raised over $8,700 for Children’s! It was a beautiful day to walk along the Charles.…
June 6 Update
BIG NEWS! Olivia was transferred out of Boston Children’s NICU and over to Franciscan Children’s in Brighton today! She is no longer in a hospital - she’s in rehab, which…
May 29 Update
Olivia is recovering well from her G-tube surgery, and Mom and Dad are learning how to care for that new piece of equipmen Olivia’s PEEP was successfully lowered to 8…
May 22 Update
Olivia turned 5 months old on 5/20 - she has been at Children’s for three months now. She weighs 3.83K, or 8lbs 6.5oz. Olivia has a G-tube surgery planned for…
May 15 Update
Olivia now weighs 3.625 K, or 8 lbs! Her feeds have been changed from continuous feeds, 24/7, into her jejunum (small intestine), to bolus feeds over two hours into her…
May 9 Update
Olivia weighs 3.425K, or 7lbs 9oz She’s 19.5” long Olivia has officially been weaned off her morphine! She’s so much more awake now, and has begun mastering how to suck…
April 22 Update
Olivia turned four months old on 4/20! She weighs 7lbs 12oz We are currently working on weaning her off Ativan (formerly Midaz), but it is definitely causing some withdrawal. Olivia…