June 20 Update
Olivia turned 6 months old on 6/20 She now weighs 4.77 kg, or 10 lbs 8 oz She grew to 53.2 cm or 20.9 in Max celebrated his first Father's…
June 12 Update
Yesterday Olivia’s Omegas walked in the Boston Children’s Hospital Eversource Walk for Kids! Our team raised over $8,700 for Children’s! It was a beautiful day to walk along the Charles.…
June 6 Update
BIG NEWS! Olivia was transferred out of Boston Children’s NICU and over to Franciscan Children’s in Brighton today! She is no longer in a hospital - she’s in rehab, which…
May 15 Update
Olivia now weighs 3.625 K, or 8 lbs! Her feeds have been changed from continuous feeds, 24/7, into her jejunum (small intestine), to bolus feeds over two hours into her…
April 22 Update
Olivia turned four months old on 4/20! She weighs 7lbs 12oz We are currently working on weaning her off Ativan (formerly Midaz), but it is definitely causing some withdrawal. Olivia…
Apr 16 General Update
Olivia is doing well since she’s been woken up from her tracheostomy recovery. She is still swollen, especially in her head and neck, but she’s looking pretty good otherwise. Olivia…
Apr 10-11 General Update
Olivia had her final day of recovery for her tracheostomy on Monday. The Otorhinolaryngology (ORL team - they performed the tracheostomy) has been monitoring her recovery closely and are pleased…