August 7 Update
Wow, just like that Olivia is 19 months old! Apologies for the huge break between the last update and this one. The summer has been very busy for the whole…
May 7th Update
Happy May! We are so excited for the nice weather over the last few weeks. Olivia has gone out on walks with lots of family members, and Anya of course!…
Valentines Day Update
(This post written by Dan) It’s valentines day, and while Max and Becky get to celebrate, here’s a gift for all of you! (Link for phones that don’t like playing…
Dec 5 Update
Olivia has been doing well since she’s been home. She stayed in the Children’s Hospital MICU from her respiratory arrest event until Wednesday, 11/22, after her planned triple scope/bronchoscopy. I…
Nov. 18 Update
(Trigger Warning - choking) Early Friday morning, Olivia suffered an airway failure and a respiratory arrest. She is currently awake, alert and stable in the Medical ICU at Boston Children’s…
Sept 20 Update
Happy 9 months to Olivia Hope! This little rockstar has enjoyed her second month home with her family. Olivia is doing better at almost-rolling, and is no longer bothered with…
July 18 Long (but good) Update
Olivia is now spending 12 hours off the vent on trach mist or the HME (Heat Moisture Exchanger)! She loves not being on the vent, and we love it too.…
July 10 Update
Sunday, Becky and Max celebrated Olivia’s homecoming in different ways: Becky had a beautiful baby shower with some family and friends, with a Lion King/jungle theme (same as Olivia’s nursery!).…
July 6 Update
BIG NEWS - WE HAVE A PRELIMINARY DISCHARGE DATE SET FOR LATE JULY!!!!! AHHHHHHHHHHHHHHHHHHH Nap chairs are the best, amirite? Respiratory: Olivia is now doing 2 hours of time off…
June 29 Update
Olivia weighs 4.9 kg or 10 lbs 13 oz Respiratory Olivia’s PEEP was weaned to 7, and then 6 in the last week, and her pressure support went down as…