June 29 Update
Olivia weighs 4.9 kg or 10 lbs 13 oz Respiratory Olivia’s PEEP was weaned to 7, and then 6 in the last week, and her pressure support went down as…
June 12 Update
Yesterday Olivia’s Omegas walked in the Boston Children’s Hospital Eversource Walk for Kids! Our team raised over $8,700 for Children’s! It was a beautiful day to walk along the Charles.…
May 22 Update
Olivia turned 5 months old on 5/20 - she has been at Children’s for three months now. She weighs 3.83K, or 8lbs 6.5oz. Olivia has a G-tube surgery planned for…
May 15 Update
Olivia now weighs 3.625 K, or 8 lbs! Her feeds have been changed from continuous feeds, 24/7, into her jejunum (small intestine), to bolus feeds over two hours into her…
April 22 Update
Olivia turned four months old on 4/20! She weighs 7lbs 12oz We are currently working on weaning her off Ativan (formerly Midaz), but it is definitely causing some withdrawal. Olivia…
Apr 3 – Pre-Op Update
Trigger warning - choking Sunday was a very scary day for Olivia. Max was holding Olivia, and for the first 40 minutes, she was asleep and perfectly comfortable. Olivia then…
Mar 27 – Letter from Becky and Max
With the passage of her original due date on 3/21, Olivia continues in her long journey of recovery from premature birth. Although she still requires an inpatient level of care,…
Dec 31 – Becky & Max Update
Becky and Max are continuing to enjoy the comforts of home Max and Becky have seen Olivia every day, and plan to keep doing so going forward. We are not…
Dec 25 – Parents (and Anya) Home
I’m doing this update based on a conversation with Max instead of copying from his written out updates to give him a chance to rest and just be with Becky…
Dec 24 11:30 am – Becky Update
BP 128/64! We will be discharged tomorrow, 12/25. Discharge times are 10-1 Plan is to get breakfast, see Olivia, then leave Today I will begin to pack the car and…