July 26 – I’m home! (Olivia’s Blog)
After 217 days in the hospital, I finally came home to Tyngsboro! I was sent off in style at Franciscan’s by all her favorite nurses, therapists, NPs, and helpers. I…
July 18 Long (but good) Update
Olivia is now spending 12 hours off the vent on trach mist or the HME (Heat Moisture Exchanger)! She loves not being on the vent, and we love it too.…
July 10 Update
Sunday, Becky and Max celebrated Olivia’s homecoming in different ways: Becky had a beautiful baby shower with some family and friends, with a Lion King/jungle theme (same as Olivia’s nursery!).…
July 6 Update
BIG NEWS - WE HAVE A PRELIMINARY DISCHARGE DATE SET FOR LATE JULY!!!!! AHHHHHHHHHHHHHHHHHHH Nap chairs are the best, amirite? Respiratory: Olivia is now doing 2 hours of time off…
June 12 Update
Yesterday Olivia’s Omegas walked in the Boston Children’s Hospital Eversource Walk for Kids! Our team raised over $8,700 for Children’s! It was a beautiful day to walk along the Charles.…
June 6 Update
BIG NEWS! Olivia was transferred out of Boston Children’s NICU and over to Franciscan Children’s in Brighton today! She is no longer in a hospital - she’s in rehab, which…
May 29 Update
Olivia is recovering well from her G-tube surgery, and Mom and Dad are learning how to care for that new piece of equipmen Olivia’s PEEP was successfully lowered to 8…
May 22 Update
Olivia turned 5 months old on 5/20 - she has been at Children’s for three months now. She weighs 3.83K, or 8lbs 6.5oz. Olivia has a G-tube surgery planned for…
May 15 Update
Olivia now weighs 3.625 K, or 8 lbs! Her feeds have been changed from continuous feeds, 24/7, into her jejunum (small intestine), to bolus feeds over two hours into her…