Apr 10-11 General Update
Olivia had her final day of recovery for her tracheostomy on Monday. The Otorhinolaryngology (ORL team - they performed the tracheostomy) has been monitoring her recovery closely and are pleased…
Mar 27 – Letter from Becky and Max
With the passage of her original due date on 3/21, Olivia continues in her long journey of recovery from premature birth. Although she still requires an inpatient level of care,…
Mar 14-17
Olivia turned 12 weeks old this week, gestationally 39 weeks She weighs 2.5k, or 5lbs 8oz. That’s 4 lbs heavier than her birth weight. The steroids aren’t helping her make…
Mar 10-13 Update
Respiratory Unfortunately Olivia has not made much progress with her vent settings at this time - the steroids haven’t shown much effectiveness She’s halfway through the steroid course, so there’s…
Mar 5-9 Update
Olivia has recovered from her PDA Surgery and is in the midst of a steroid treatment now The hope is that the steroids will help Olivia’s lung development, and reduce…
Mar 2-4 Update
BIG NEWS - Olivia had her PDA procedure yesterday! We have been waiting for this for months! This procedure closed her PDA with an amplatzer duct occluder II. Olivia was…
Feb 27-Mar 1 Update
Today was Olivia’s last day of Cipro, treating the most recent infection. Tomorrow she will get another echo, which will hopefully show her PDA has remained small/closed. If so, she…
Feb 24-26 Update
Olivia has been completely weaned off the nitric oxide for the first time in weeks, and the paralytic was stopped After this, the team did a repeat echo to look…
Feb 21-23 Update
Boston Children's Hospital Olivia was moved to Boston Children’s Hospital on 2/20 at 9pm. The transport was very difficult for her. She required significant additional support both during and once…
Feb 13-16 Update
Olivia turned 8 weeks old on Valentine’s Day! Mom and Dad spent the evening with their love, holding her for a few hours. She was very active and was looking…