August 7 Update
Wow, just like that Olivia is 19 months old! Apologies for the huge break between the last update and this one. The summer has been very busy for the whole…
May 7th Update
Happy May! We are so excited for the nice weather over the last few weeks. Olivia has gone out on walks with lots of family members, and Anya of course!…
March 7 Update
Last week marks a notable date - Olivia has now been home longer than she lived in the hospital! It feels great to know we’ve had our baby with us…
Jan 29 Update
(Sorry for posting this one late! -Dan) It’s been a bit since our last update, but Olivia and the whole family have been doing well. Zzzzzzz... Olivia now weighs 8.39…
Dec 5 Update
Olivia has been doing well since she’s been home. She stayed in the Children’s Hospital MICU from her respiratory arrest event until Wednesday, 11/22, after her planned triple scope/bronchoscopy. I…
Nov. 18 Update
(Trigger Warning - choking) Early Friday morning, Olivia suffered an airway failure and a respiratory arrest. She is currently awake, alert and stable in the Medical ICU at Boston Children’s…
Oct 3 Update
(This update took me a little longer than I wanted to post, sorry for the delay! Have a beautiful Olivia pic taken by one of her nurses, Kat, as an…
July 18 Long (but good) Update
Olivia is now spending 12 hours off the vent on trach mist or the HME (Heat Moisture Exchanger)! She loves not being on the vent, and we love it too.…
July 10 Update
Sunday, Becky and Max celebrated Olivia’s homecoming in different ways: Becky had a beautiful baby shower with some family and friends, with a Lion King/jungle theme (same as Olivia’s nursery!).…
July 6 Update
BIG NEWS - WE HAVE A PRELIMINARY DISCHARGE DATE SET FOR LATE JULY!!!!! AHHHHHHHHHHHHHHHHHHH Nap chairs are the best, amirite? Respiratory: Olivia is now doing 2 hours of time off…