May 15 Update
Olivia now weighs 3.625 K, or 8 lbs! Her feeds have been changed from continuous feeds, 24/7, into her jejunum (small intestine), to bolus feeds over two hours into her…
May 9 Update
Olivia weighs 3.425K, or 7lbs 9oz She’s 19.5” long Olivia has officially been weaned off her morphine! She’s so much more awake now, and has begun mastering how to suck…
Apr 23-30
Olivia had an up-and-down last few days. Olivia continues to successfully wean off her sedation, and has less than a week left to go before being completely off of morphine.…
Apr 16 General Update
Olivia is doing well since she’s been woken up from her tracheostomy recovery. She is still swollen, especially in her head and neck, but she’s looking pretty good otherwise. Olivia…
Feb 27-Mar 1 Update
Today was Olivia’s last day of Cipro, treating the most recent infection. Tomorrow she will get another echo, which will hopefully show her PDA has remained small/closed. If so, she…
Feb 17-20
EXCITING NEWS! OLIVIA IS BEING MOVED TO CHILDREN’S HOSPITAL FOR THE PDA PROCEDURE! There were several steps before getting to this point. We’ve been waiting for this since Saturday, when…
Feb 13-16 Update
Olivia turned 8 weeks old on Valentine’s Day! Mom and Dad spent the evening with their love, holding her for a few hours. She was very active and was looking…
Feb 1-2 Update
Olivia weighs 1710 grams, 3 lbs 12 oz Olivia is being weaned off the morphine, and onto another drug called Clonidine She had another eye exam with nothing too exciting…
Jan 25-26 General Update
More developments from Olivia’s sudden worsening of status The primary issue at present is that Olivia has an infection in her blood. When Olivia previously had pneumonia, the antibiotics course…
Jan 22-24 General Notes
Olivia is 5 weeks old today, and weighs 3 pounds - double her birth weight She had been doing well on the steroids but had a very difficult night -…