May 28 Update
Olivia had a great Memorial Day weekend! She saw lots of family and friends, and went to her first ever party! It was so exciting to be able to bring…
April 21 Update
What an exciting past few weeks for everyone! After lots of paperwork and planning, Olivia was approved for respite at a skilled nursing facility (New England Pediatric Care) so that…
Mar 27 (Very Late) Update
Olivia celebrated Easter early with some family. She loved pulling the eggs out of the basket, and was mildly successful at opening her presents. No bother! Olivia has had a…
Jan 29 Update
(Sorry for posting this one late! -Dan) It’s been a bit since our last update, but Olivia and the whole family have been doing well. Zzzzzzz... Olivia now weighs 8.39…
Dec 5 Update
Olivia has been doing well since she’s been home. She stayed in the Children’s Hospital MICU from her respiratory arrest event until Wednesday, 11/22, after her planned triple scope/bronchoscopy. I…
Oct 3 Update
(This update took me a little longer than I wanted to post, sorry for the delay! Have a beautiful Olivia pic taken by one of her nurses, Kat, as an…
Sept 20 Update
Happy 9 months to Olivia Hope! This little rockstar has enjoyed her second month home with her family. Olivia is doing better at almost-rolling, and is no longer bothered with…
July 6 Update
BIG NEWS - WE HAVE A PRELIMINARY DISCHARGE DATE SET FOR LATE JULY!!!!! AHHHHHHHHHHHHHHHHHHH Nap chairs are the best, amirite? Respiratory: Olivia is now doing 2 hours of time off…