Olivia has been doing well since she’s been home. She stayed in the Children’s Hospital MICU from her respiratory arrest event until Wednesday, 11/22, after her planned triple scope/bronchoscopy. I…
Olivia had her final day of recovery for her tracheostomy on Monday. The Otorhinolaryngology (ORL team - they performed the tracheostomy) has been monitoring her recovery closely and are pleased…
Today was Olivia’s last day of Cipro, treating the most recent infection. Tomorrow she will get another echo, which will hopefully show her PDA has remained small/closed. If so, she…
Olivia has been completely weaned off the nitric oxide for the first time in weeks, and the paralytic was stopped After this, the team did a repeat echo to look…
Boston Children's Hospital Olivia was moved to Boston Children’s Hospital on 2/20 at 9pm. The transport was very difficult for her. She required significant additional support both during and once…
Olivia turned 8 weeks old on Valentine’s Day! Mom and Dad spent the evening with their love, holding her for a few hours. She was very active and was looking…
There hasn’t been much going on with Olivia, which is why we haven’t updated recently. Honestly, this is a good thing. Antibiotics: She’s on day 19/21 for her antibiotic. Once…
Olivia weighs 1870 grams - that’s 4lbs 2oz!!! Yes, lots of that is definitely still excess fluid Her diuretic is being increased, and her eyes are looking slightly less tree…