Dec 5 Update
Olivia has been doing well since she’s been home. She stayed in the Children’s Hospital MICU from her respiratory arrest event until Wednesday, 11/22, after her planned triple scope/bronchoscopy. I…
Oct 3 Update
(This update took me a little longer than I wanted to post, sorry for the delay! Have a beautiful Olivia pic taken by one of her nurses, Kat, as an…
Sept 20 Update
Happy 9 months to Olivia Hope! This little rockstar has enjoyed her second month home with her family. Olivia is doing better at almost-rolling, and is no longer bothered with…
Aug 31 Update
Olivia turned 8 months old on the 20th! She has been home with us for over a month, and we can’t believe how fast the time has flown. More and…
July 18 Long (but good) Update
Olivia is now spending 12 hours off the vent on trach mist or the HME (Heat Moisture Exchanger)! She loves not being on the vent, and we love it too.…
July 6 Update
BIG NEWS - WE HAVE A PRELIMINARY DISCHARGE DATE SET FOR LATE JULY!!!!! AHHHHHHHHHHHHHHHHHHH Nap chairs are the best, amirite? Respiratory: Olivia is now doing 2 hours of time off…
June 29 Update
Olivia weighs 4.9 kg or 10 lbs 13 oz Respiratory Olivia’s PEEP was weaned to 7, and then 6 in the last week, and her pressure support went down as…
June 20 Update
Olivia turned 6 months old on 6/20 She now weighs 4.77 kg, or 10 lbs 8 oz She grew to 53.2 cm or 20.9 in Max celebrated his first Father's…
June 12 Update
Yesterday Olivia’s Omegas walked in the Boston Children’s Hospital Eversource Walk for Kids! Our team raised over $8,700 for Children’s! It was a beautiful day to walk along the Charles.…