August 7 Update
Wow, just like that Olivia is 19 months old! Apologies for the huge break between the last update and this one. The summer has been very busy for the whole…
April 21 Update
What an exciting past few weeks for everyone! After lots of paperwork and planning, Olivia was approved for respite at a skilled nursing facility (New England Pediatric Care) so that…
Dec 5 Update
Olivia has been doing well since she’s been home. She stayed in the Children’s Hospital MICU from her respiratory arrest event until Wednesday, 11/22, after her planned triple scope/bronchoscopy. I…
Aug 31 Update
Olivia turned 8 months old on the 20th! She has been home with us for over a month, and we can’t believe how fast the time has flown. More and…
Aug 8 Update
Olivia has been home for two weeks now! She’s loving it, but I think her family is loving it more. It’s been absolutely wonderful being able to have guests come…
Contacting Becky and Max Update
EDIT: This no longer applies. Feel free to reach out directly again! 7/26/2023 Hey everybody! We are so excited to have Olivia home within the next week!! During this intense…
July 18 Long (but good) Update
Olivia is now spending 12 hours off the vent on trach mist or the HME (Heat Moisture Exchanger)! She loves not being on the vent, and we love it too.…
July 6 Update
BIG NEWS - WE HAVE A PRELIMINARY DISCHARGE DATE SET FOR LATE JULY!!!!! AHHHHHHHHHHHHHHHHHHH Nap chairs are the best, amirite? Respiratory: Olivia is now doing 2 hours of time off…