May 7th Update
Happy May! We are so excited for the nice weather over the last few weeks. Olivia has gone out on walks with lots of family members, and Anya of course!…
Jan 29 Update
(Sorry for posting this one late! -Dan) It’s been a bit since our last update, but Olivia and the whole family have been doing well. Zzzzzzz... Olivia now weighs 8.39…
July 6 Update
BIG NEWS - WE HAVE A PRELIMINARY DISCHARGE DATE SET FOR LATE JULY!!!!! AHHHHHHHHHHHHHHHHHHH Nap chairs are the best, amirite? Respiratory: Olivia is now doing 2 hours of time off…
June 20 Update
Olivia turned 6 months old on 6/20 She now weighs 4.77 kg, or 10 lbs 8 oz She grew to 53.2 cm or 20.9 in Max celebrated his first Father's…
May 29 Update
Olivia is recovering well from her G-tube surgery, and Mom and Dad are learning how to care for that new piece of equipmen Olivia’s PEEP was successfully lowered to 8…
May 24 Good News Post-Op Update
Olivia had her G-Tube surgery today at 9am and is now back in her room resting and recovering comfortably. The doctors said the procedure went very well.
May 22 Update
Olivia turned 5 months old on 5/20 - she has been at Children’s for three months now. She weighs 3.83K, or 8lbs 6.5oz. Olivia has a G-tube surgery planned for…
May 15 Update
Olivia now weighs 3.625 K, or 8 lbs! Her feeds have been changed from continuous feeds, 24/7, into her jejunum (small intestine), to bolus feeds over two hours into her…