June 6 Update
BIG NEWS! Olivia was transferred out of Boston Children’s NICU and over to Franciscan Children’s in Brighton today! She is no longer in a hospital - she’s in rehab, which…
May 29 Update
Olivia is recovering well from her G-tube surgery, and Mom and Dad are learning how to care for that new piece of equipmen Olivia’s PEEP was successfully lowered to 8…
May 22 Update
Olivia turned 5 months old on 5/20 - she has been at Children’s for three months now. She weighs 3.83K, or 8lbs 6.5oz. Olivia has a G-tube surgery planned for…
May 15 Update
Olivia now weighs 3.625 K, or 8 lbs! Her feeds have been changed from continuous feeds, 24/7, into her jejunum (small intestine), to bolus feeds over two hours into her…
May 9 Update
Olivia weighs 3.425K, or 7lbs 9oz She’s 19.5” long Olivia has officially been weaned off her morphine! She’s so much more awake now, and has begun mastering how to suck…
Apr 23-30
Olivia had an up-and-down last few days. Olivia continues to successfully wean off her sedation, and has less than a week left to go before being completely off of morphine.…
Apr 16 General Update
Olivia is doing well since she’s been woken up from her tracheostomy recovery. She is still swollen, especially in her head and neck, but she’s looking pretty good otherwise. Olivia…
Apr 10-11 General Update
Olivia had her final day of recovery for her tracheostomy on Monday. The Otorhinolaryngology (ORL team - they performed the tracheostomy) has been monitoring her recovery closely and are pleased…
Apr 3 – Pre-Op Update
Trigger warning - choking Sunday was a very scary day for Olivia. Max was holding Olivia, and for the first 40 minutes, she was asleep and perfectly comfortable. Olivia then…
Mar 30 Update
Olivia turned 100 days old today! Weight = 6lbs 3oz - more than four times her birth weight Tracheostomy Update: Olivia’s procedure is scheduled for Monday, April 3. She will…