Mar 18-21 Update
Today (3.21.23) is Olivia’s due date She turned 3 months old yesterday She weighs 2.58 kg, or 5 lbs 11 oz Her steroid course is complete Becky and Max will…
Mar 14-17
Olivia turned 12 weeks old this week, gestationally 39 weeks She weighs 2.5k, or 5lbs 8oz. That’s 4 lbs heavier than her birth weight. The steroids aren’t helping her make…
Mar 10-13 Update
Respiratory Unfortunately Olivia has not made much progress with her vent settings at this time - the steroids haven’t shown much effectiveness She’s halfway through the steroid course, so there’s…
Mar 5-9 Update
Olivia has recovered from her PDA Surgery and is in the midst of a steroid treatment now The hope is that the steroids will help Olivia’s lung development, and reduce…
Mar 2-4 Update
BIG NEWS - Olivia had her PDA procedure yesterday! We have been waiting for this for months! This procedure closed her PDA with an amplatzer duct occluder II. Olivia was…
Mar 3 – PDA Procedure Update
Just a quick update from Dan about Olivia's PDA: Olivia had her PDA closing procedure around 1pm today. The doctor said it took 3.5 minutes and it went well! Recovery…
Feb 27-Mar 1 Update
Today was Olivia’s last day of Cipro, treating the most recent infection. Tomorrow she will get another echo, which will hopefully show her PDA has remained small/closed. If so, she…
Feb 24-26 Update
Olivia has been completely weaned off the nitric oxide for the first time in weeks, and the paralytic was stopped After this, the team did a repeat echo to look…
Feb 21-23 Update
Boston Children's Hospital Olivia was moved to Boston Children’s Hospital on 2/20 at 9pm. The transport was very difficult for her. She required significant additional support both during and once…
Feb 17-20
EXCITING NEWS! OLIVIA IS BEING MOVED TO CHILDREN’S HOSPITAL FOR THE PDA PROCEDURE! There were several steps before getting to this point. We’ve been waiting for this since Saturday, when…