April 22 Update
Olivia turned four months old on 4/20! She weighs 7lbs 12oz We are currently working on weaning her off Ativan (formerly Midaz), but it is definitely causing some withdrawal. Olivia…
Apr 16 General Update
Olivia is doing well since she’s been woken up from her tracheostomy recovery. She is still swollen, especially in her head and neck, but she’s looking pretty good otherwise. Olivia…
Apr 10-11 General Update
Olivia had her final day of recovery for her tracheostomy on Monday. The Otorhinolaryngology (ORL team - they performed the tracheostomy) has been monitoring her recovery closely and are pleased…
Apr 5 – Tracheostomy Update
Today was the big day - Olivia had surgery to have a tracheostomy placed, which was successful and unremarkable The surgery was less than two hours, including the prep For…
Apr 3 – Pre-Op Update
Trigger warning - choking Sunday was a very scary day for Olivia. Max was holding Olivia, and for the first 40 minutes, she was asleep and perfectly comfortable. Olivia then…
Mar 30 Update
Olivia turned 100 days old today! Weight = 6lbs 3oz - more than four times her birth weight Tracheostomy Update: Olivia’s procedure is scheduled for Monday, April 3. She will…
Mar 10-13 Update
Respiratory Unfortunately Olivia has not made much progress with her vent settings at this time - the steroids haven’t shown much effectiveness She’s halfway through the steroid course, so there’s…
Mar 5-9 Update
Olivia has recovered from her PDA Surgery and is in the midst of a steroid treatment now The hope is that the steroids will help Olivia’s lung development, and reduce…
Mar 2-4 Update
BIG NEWS - Olivia had her PDA procedure yesterday! We have been waiting for this for months! This procedure closed her PDA with an amplatzer duct occluder II. Olivia was…
Mar 3 – PDA Procedure Update
Just a quick update from Dan about Olivia's PDA: Olivia had her PDA closing procedure around 1pm today. The doctor said it took 3.5 minutes and it went well! Recovery…