July 18 Long (but good) Update
Olivia is now spending 12 hours off the vent on trach mist or the HME (Heat Moisture Exchanger)! She loves not being on the vent, and we love it too.…
July 6 Update
BIG NEWS - WE HAVE A PRELIMINARY DISCHARGE DATE SET FOR LATE JULY!!!!! AHHHHHHHHHHHHHHHHHHH Nap chairs are the best, amirite? Respiratory: Olivia is now doing 2 hours of time off…
June 20 Update
Olivia turned 6 months old on 6/20 She now weighs 4.77 kg, or 10 lbs 8 oz She grew to 53.2 cm or 20.9 in Max celebrated his first Father's…
June 12 Update
Yesterday Olivia’s Omegas walked in the Boston Children’s Hospital Eversource Walk for Kids! Our team raised over $8,700 for Children’s! It was a beautiful day to walk along the Charles.…
June 6 Update
BIG NEWS! Olivia was transferred out of Boston Children’s NICU and over to Franciscan Children’s in Brighton today! She is no longer in a hospital - she’s in rehab, which…
May 29 Update
Olivia is recovering well from her G-tube surgery, and Mom and Dad are learning how to care for that new piece of equipmen Olivia’s PEEP was successfully lowered to 8…
May 24 Good News Post-Op Update
Olivia had her G-Tube surgery today at 9am and is now back in her room resting and recovering comfortably. The doctors said the procedure went very well.
May 22 Update
Olivia turned 5 months old on 5/20 - she has been at Children’s for three months now. She weighs 3.83K, or 8lbs 6.5oz. Olivia has a G-tube surgery planned for…
May 15 Update
Olivia now weighs 3.625 K, or 8 lbs! Her feeds have been changed from continuous feeds, 24/7, into her jejunum (small intestine), to bolus feeds over two hours into her…
May 9 Update
Olivia weighs 3.425K, or 7lbs 9oz She’s 19.5” long Olivia has officially been weaned off her morphine! She’s so much more awake now, and has begun mastering how to suck…