August 7 Update
Wow, just like that Olivia is 19 months old! Apologies for the huge break between the last update and this one. The summer has been very busy for the whole…
May 28 Update
Olivia had a great Memorial Day weekend! She saw lots of family and friends, and went to her first ever party! It was so exciting to be able to bring…
May 7th Update
Happy May! We are so excited for the nice weather over the last few weeks. Olivia has gone out on walks with lots of family members, and Anya of course!…
April 21 Update
What an exciting past few weeks for everyone! After lots of paperwork and planning, Olivia was approved for respite at a skilled nursing facility (New England Pediatric Care) so that…
Mar 27 (Very Late) Update
Olivia celebrated Easter early with some family. She loved pulling the eggs out of the basket, and was mildly successful at opening her presents. No bother! Olivia has had a…
Valentines Day Update
(This post written by Dan) It’s valentines day, and while Max and Becky get to celebrate, here’s a gift for all of you! (Link for phones that don’t like playing…
Jan 29 Update
(Sorry for posting this one late! -Dan) It’s been a bit since our last update, but Olivia and the whole family have been doing well. Zzzzzzz... Olivia now weighs 8.39…
Oct 3 Update
(This update took me a little longer than I wanted to post, sorry for the delay! Have a beautiful Olivia pic taken by one of her nurses, Kat, as an…
Aug 8 Update
Olivia has been home for two weeks now! She’s loving it, but I think her family is loving it more. It’s been absolutely wonderful being able to have guests come…
July 18 Long (but good) Update
Olivia is now spending 12 hours off the vent on trach mist or the HME (Heat Moisture Exchanger)! She loves not being on the vent, and we love it too.…