April 21 Update
What an exciting past few weeks for everyone! After lots of paperwork and planning, Olivia was approved for respite at a skilled nursing facility (New England Pediatric Care) so that…
Aug 8 Update
Olivia has been home for two weeks now! She’s loving it, but I think her family is loving it more. It’s been absolutely wonderful being able to have guests come…
July 18 Long (but good) Update
Olivia is now spending 12 hours off the vent on trach mist or the HME (Heat Moisture Exchanger)! She loves not being on the vent, and we love it too.…
June 12 Update
Yesterday Olivia’s Omegas walked in the Boston Children’s Hospital Eversource Walk for Kids! Our team raised over $8,700 for Children’s! It was a beautiful day to walk along the Charles.…
June 6 Update
BIG NEWS! Olivia was transferred out of Boston Children’s NICU and over to Franciscan Children’s in Brighton today! She is no longer in a hospital - she’s in rehab, which…
May 9 Update
Olivia weighs 3.425K, or 7lbs 9oz She’s 19.5” long Olivia has officially been weaned off her morphine! She’s so much more awake now, and has begun mastering how to suck…
Feb 17-20
EXCITING NEWS! OLIVIA IS BEING MOVED TO CHILDREN’S HOSPITAL FOR THE PDA PROCEDURE! There were several steps before getting to this point. We’ve been waiting for this since Saturday, when…
Feb 3-5 Update
Olivia weighs 1870 grams - that’s 4lbs 2oz!!! Yes, lots of that is definitely still excess fluid Her diuretic is being increased, and her eyes are looking slightly less tree…
Feb 1-2 Update
Olivia weighs 1710 grams, 3 lbs 12 oz Olivia is being weaned off the morphine, and onto another drug called Clonidine She had another eye exam with nothing too exciting…
Jan 30-31 General Update
Olivia is 6 weeks old! Olivia was moved from the Hi-Fi ventilator to a conventional one on 1/29 at night, which was an amazing surprise when Becky came in to…